A relapse or an episode?

RobertI promised yesterday that I would veer off-topic today, and here it is. It is also personal and may ramble a bit. No apologies, just FYI.

My son Robert spent a week in the hospital last year with a curious disease called ADEM for short. I shared about here at B2Blog, but essentially the neurologist described it as a form of encephalitis that acts like a one-time MS-type (Multiple Sclerosis) event.

Tuesday it became clear to me that he was having similar symptoms (low dexterity in his left hand and foot) and was probably suffering from a relapse, which the internet soon confirmed is possible. I also found some other articles with medical descriptions of many different related causes, some with dire outcomes. So Robert is now back at the hospital doing a new course of steroids and waiting for a spinal-tap and MRI. Unfortunately, we feel comfortable at the hospital…and we feel upset because this wasn’t supposed to happen again.

Despite not having new tests done, the neurologist was ready to make his own prognosis. Basically he saw this as one continuous problem, as there were signs that he didn’t fully recover from the first event, especially an MRI last August that showed new lesions. ‘I really see this as more of a case of MS’ he finally told us. It didn’t come out of the blue…we were warned in August that it was a possibility.

CRAP!

He went on to describe how even though Robert is a statistical lottery winner (most MS cases are female, and onset is usually in early adulthood), it doesn’t mean it can’t happen to him. The doctor was more confident in his diagnosis without being influenced by the numbers. This makes this hospital event an MS Episode, or flare-up, not an ADEM relapse.

For right now, we are dealing with the day-to-day recovery of this episode, but we will have to make some long range decisions about treatment. And the worry about his long-term prognosis–will this be degenerative or not (some people suffer under MS, others just struggle, if you can understand the distinction).

So from yesterday’s post (which I started before we went to the hospital and finished when I got home), here are why those three Men’s Health articles have new poignancy:

  • The article about “How Happy Are You?” should have an obvious tie-in.
  • The article about flu quarantines reminds me that the long-term strategy to deal with this (via medication) will be a hard decision to get ‘right’. Well, there is no ‘right’.
  • And the interview with Robert Rodriguez causes me ache because my Robert is creative and I wish him success like Mr. Rodriguez. Now it hurts to think that far ahead.

The best advise came from a fellow MS sufferer, my Mother…but its not what you would expect. She told me this after his August MRI: “Remember that whatever the diagnosis, he still hasn’t changed. He is still Robert.”

While I am obviously accepting the diagnosis (which comes from trusting the expert and recognizing the significance of the many clues that lead to his opinion, as there is no definitive test), I am suffering what can only be described as resignation and buyer’s remorse. But at the same time I feel empowered…to keep this positive and help lead Robert to a satisfying life. He has been given a special opportunity to live life with the importance and passion that not many healthy people have. God bless him.

A sleeper management rag

Okay, this blog isn’t about being a manager, or motivation, or your health. But its my blog and I can do what I want. Besides, if I find something of value to me, I think it might be of value to you.

So what’s the recommendation? Men’s Health magazine. Okay, I’ve recommended it before. But this New Year’s issue has a lot of good stuff that is worth reading and acting on.

This time I found it especially provides some good content for being motivated and being a leader. Here’s a peek:

“Take it from me” interview with filmmaker Robert Rodriguez with this hot list called a Riot Act:

  1. Creativity only lets you dream. Match it with technical expertise and you can build.
  2. Cash is a crutch. Buying away problems is not the same as solving them.
  3. Include your kids in you work and watch their confidence blast off.
  4. Perfection is a crapshoot. The more projects you finish, the better your odds.

The “If the Flu Becomes a Crime” article openly questions President Bush’s endorsement of enforced quarantine as a strategy to contain a flu-like pandemic. The article’s study of strategy and the hidden risks of quarantine is emphasized by the compelling story of John Early from almost a hundred years ago. A great management lesson that the obvious and/or popular solution is not always the one that should be used.

The best article is the one called “How Happy Are You?” I think its just terrific to see happiness treated as such an important topic, a topic of health. To us marketers, it helps to understand the behavior of our customers, and to leaders, the behaviors of their followers and themselves. The challenge from the article is that because happiness is part of our health, it can change…which means we can actively exercise it and improve it.

The topic of all three of these articles have a particular weight on me today. I’d like to veer a little more off-topic tomorrow to tell you why.

Watching the numbers

I ‘run the numbers’ at the end of every month, to see how traffic was at our website. Its fun, and I always try to dig a little deeper to see if the numbers mean anything. Using Google Analytics has increased my fun. I still use FastStats to crank thru the log-files for additional detail.

Here’s the thing, using an unnamed online directory (as this is a common problem):

Clicks the directory has recorded going to my website: 48
Referrals counted by log files: 39
Referrals counted by Analytics: 35

I know there are reasons why each number is different, but which is the number I should track?
Seems this always comes with the directory showing a higher number, in one case almost 4x higher. Phooey to all those who say that web traffic is measurable!

Which leaves me to quote Mark Twain (or Segal, or someone else)…“A man with one watch knows what time it is. A man with two watches is never sure.”

Starting the new year at level 4

Every blogger it seems, needs to say something important about the New Year–me too. I have a couple posts I want to write, but this first one is easy…

I’ve not made a list of goals (yet), or changed any behaviors (tho I am thinking of a few). What I have started doing is cutting things. Unsubscribing to some newsletters and a few blogs, deciding to give up a couple projects/tasks, and trying to quit a couple distractions that aren’t in my goals (like playing America’s Army).

This morning I started unsubscribing to a newsletter and noticed that ‘cutting’ was Level 4 of the Seven Levels of Change posted on my desk (and here linked to my nearly forgotten-but-not-cut ’40-days of purpose blog’). Interesting that I also found a post there regarding cutting with this nifty thought: “How much does one cut?”

Someone here at the office is having their dog put to sleep this morning. That is a deep cut, and maybe not even voluntary, but it makes you think.

>>>This activity of mine is just a habit that I heard mentioned in David Allen’s Ready For Anything book. Something along the lines of ‘if you aren’t sure where to start or how to jump-start your productive activity, clean your desk’.